2 Reports on Covid-19 and XLHED from Germany

[Andrea Burk]

I am a member of the German ED-Group (and mom to a little 3-year old with XLHED). Andrea Burk asked me to summarize and translate the first reports, that have been posted in our forum by members of our Group for Ectodermal Dysplasias, explaining how the Corona-Virus affected them.

Both cases went without severe symptoms or need of hospitalization.

1.      Female, XLHED, 37 years old

The Symptoms started on Wednesday with dizziness,nausea and general discomfort. They worsened after dinner, with vomiting and a fever of 38,5 °C (101,3 °F) which rose to 39,6 °C (103,3 °F) during the night.
The fever started to go back down on Friday to 38,5 °C (101,3 °F) and subsided on the weekend. By then other symptoms started. Those included severe headaches, diarrhea and complete loss of sense of taste
Coughing didn’t start until Sunday but still remains as the only symptom since then. Inhaling and drinking copious amounts of fluid seem to be helping with the cough.
She as well as her husband have been tested positive for the Corona Virus since then. No hospitalization was necessary. Both daughters (no ED) remained unaffected and her husband has already recovered completely.

[Andrea Burk]

 2.       Male, XLHED, 50 years old (affected by asthma only in very dusty surroundings or in hay-filled barns.)

It started with typical cold-like symptoms. Cold shivers, fatigue, exhaustion and an overall achy body. The maximum temperature remained around 38, 5 °C (101,3 °F).
He got tested positive and immediately had to self-quarantine for 10 days, where he at first isolated himself from his family.
After 3 days however his wife and daughter started having similar symptoms to his and were also tested positive for Corona Virus. (His son (no ED) remained free of symptoms.)
From day 3 on, this person also experienced a changed sense of taste. On day 5 the before-mentioned symptoms started to subside. Headaches, shortness of breath after physical activities, as well as a dry cough remained.
After 10 days all that is left, is a minor cough. During the whole time breathing was never a problem for either of the family members.The quarantine has been lifted of the family by now and everyone is well.

I hope that you will find these two reports helpful.
All the best in these challenging times.
Julia W.