A Day for Families Affected by ED
We're excited to invite you to a very special event – our Family Day at the ICED25 Conference! This is a fantastic opportunity to learn, grow, and strengthen our growing ED community.
Our Family Day will offer a valuable platform to have all your burning questions addressed, equipping you with a deeper understanding and insight. It will feature interactive Q&A sessions covering all aspects of ectodermal dysplasia.
What is ICED25?
In 2004, the UK hosted the ECTO4, a significant milestone as one of the initial International Conferences on ectodermal dysplasia. These conferences have since become a recurring event in Europe, taking place every three years. It is with great honour and pride that we are now announcing our role as hosts for the 9th Conference, ICED25, to be held in Birmingham on 10th – 12th June 2025.
ICED25 will highlight excellence within the rare disease field, and prompt discussion, reflection, and action. We collaborate with other Ectodermal Dysplasia organisations worldwide dedicated to improving the health and well-being of people affected by the Ectodermal Dysplasias.