The Power of Sharing Our Journey with EEC Syndrome

[Iris U.]

An NFED dad and self-described introvert finds the strength in being vulnerable and the power that comes from sharing your story. He and his family share how they are facing his son's challenges with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome and using it as an opportunity to raise awareness and funds.

continue:
https://www.nfed.org/blog/the-power-of-sharing-our-journey-with-eec-syndrome/?utm_source=NFED+eNewsletter&utm_campaign=6f360589a9-EMAIL_CAMPAIGN_2017_01_24&utm_medium=email&utm_term=0_8870196c79-6f360589a9-86402707